July Update
a few things to discuss this month, some good, some not so good. I went back up to London this week to meet a neurologist who specialises in low grade gliomas. it was 10 hours on a train for a 10-15...
View ArticleAugust Update – Returning to uni and more nutrition research
Return to Wales As the title infers, I shall be returning to university next month for what will hopefully be my final year in radiography. Until this month it’s been far to the back of my mind....
View ArticleOne year anniversary: Back to University
just a quick update, I’m back at university for my final year of radiography, which starts in placement exactly a year after being diagnosed. So I’m back in hospital working this time which is much...
View ArticleUniversity, pre-scan
I'm still currently on placement in carmarthen (west wales). its going well so far and i am enjoying it. it has had some challenges, frequent headaches and lots of fatigue but its been managed okay...
View ArticleScan Results
the residual tumour mass is a large C shape occupying the superior, inferior and lateral borders of the cavity with most of the mass at the superior and inferior poles. no growth to be seen anywhere,...
View ArticleSymptoms, Galectin-1, Cannabis
So recently i've had some new symptoms. every now and then i have this feeling like i'm in a lift thats falling very fast. it only lasts a second or two but it nearly knocks me over when it happens....
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Norway + Arctic Circle
ØrnesÅlesundAquariumHad the wrong lens, moving boat, moving lightsource, completely missed the photograph.Dog SleddingNorthern Lights in TromsTromsøHonningsvåg For those who have been following since...
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Methionine Restriction for Cancer / Tumours
Catch Up After Norway I had a very indulgent Christmas with lots of family. Which was amazing but I let my diet slip quite massively. I remained vegan but ignored protein and calorie restriction. This...
View ArticlePTEN in Low Grade Gliomas
I came by this study by mistake, i certainly haven't been looking for more evidence of a shorter survival for me. it just appears every now and then when i'm online. i was actually studying mTOR...
View ArticleCarmarthen, Coursework and Charity
hello all, time for a new blog I think. I've only got two months left of what will be five years at cardiff university, which is extremely sad because i love it here. I've had some coursework deadlines...
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Scan Delay
Hey guys, I was supposed to have a scan on the 21st but the MRI department had a power cut so it didn't happen. we got off the train at bristol and are aiming to rearrange the scan for after exams....
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Transitioning + Scan Results
So it's been a while due to university finals and my dissertation etc. But i can finally say, i passed all my exams and got a 2:1 degree and will soon have a licence to practice as radiographer. I...
View ArticlePersonality Issues
Sorry its been such a long time since my last post. with starting work and everything else i haven't had much time and not a lot to talk about. I've been enjoying work quite a lot and everyone who...
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Relapse
So i travelled to London on a day off from work today to see my neuro-oncologist and have my scan with my mum and matt. The 10% of the original tumour that was left in next to my corpus callosum has...
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September 2016 Update
Hi guys, its been an awful long time, sorry. Things have been changing i just find it hard to keep putting them up here all the time. or respond to most peoples messages and texts as i'm sure a lot of...
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Jan 01/2017 scan - surgery now necessary
Hey guys, life is okay atm, i have fairly frequent head symptoms, (dizzyness, headaches etc) but a lack of seizures so in balance its all good. my life is still plodding along as close to normal as i...
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Big things, SMAll things
This blog post will mostly be talking about the Supplementary Motor Area (SMA). So after seeing the surgeons this week they told me my SMA has been invaded and will need to be removed.So basically the...
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Craniotomy number 2: 11 days post op
Hi all, so my 2nd craniotomy was booked in for the 1st june. nearly 3 1/2 years after the first one. this time with the same surgical team and same set up regarding surgical technique with the IMRI...
View Article2 Month Post Op Complications and treatment options
Things haven't gone so smoothly this month. Last time i had a craniotomy the swelling on top of my head head had died down within 5-6 weeks along with the pain (as far as i remember), however, this...
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3 month post op Update
General Update okay folks, need for an update as the last post i was about to go back in for more procedures for my hydrocephalus. that didn't happen. we didn't get a phone call calling us in. and...
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